Open Letter To Northern Ireland MLA’s

We are very glad to say that NHS England will be testing young children for rare diseases and Wales will also benefit from this, but Northern Ireland and Scotland will not Benefit we ask why? We must also ask why? Our MLA’s don’t seem to be jumping up and down about this are the children in Northern Ireland not a big enough story for them or do they not care Come On The First Minister AND Second Minister Make A Statement Saying That Children In Northern Ireland Will Also GET TESTED FOR RARE DISEASES

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About jigsawtree

Hi my name is Terence Hoey I am CEO of The Ultra Rare Disease Disorders & Disabilities Foundation LTD a non for profit charity our address is Palmerston Road Sydenham Belfast Co Antrim Northern Ireland BT41QD

Posted on January 5, 2015, in Uncategorized. Bookmark the permalink. 1 Comment.

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