NHS and Wales Start Testing Children For Rare Diseases Why Not Northern Ireland


This is great news for children if you live in England or Wales but what happens if you live in Scotland or Northern Ireland are the children in Northern Ireland being left up to our politicians from Northern Ireland or for that matter our health service surely not,Why is our children being left out health services are finding it hard to cope at the moment,We just don’t have what we need to be able to test for rare diseases or ultra rare diseases in Northern Ireland we don’t have any centers of excellence and that is down to costs.

We are still waiting to have our Northern Ireland Strategety On Rare Disease Published we are still in the consultation process when ever all other parts of the UK and Ireland have published theirs Northern Ireland is sleepwalking into major health problems within its health services Rare diseases comes way down…

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About jigsawtree

Hi my name is Terence Hoey I am CEO of The Ultra Rare Disease Disorders & Disabilities Foundation LTD a non for profit charity our address is Palmerston Road Sydenham Belfast Co Antrim Northern Ireland BT41QD

Posted on January 6, 2015, in Uncategorized. Bookmark the permalink. Comments Off on NHS and Wales Start Testing Children For Rare Diseases Why Not Northern Ireland.

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