When Awareness Fails: A story of Hope
I am part of a “Rare” group of people.
I am 1 in 100 000 people, and I have a Rare Disease.
There are two different kinds: Chronic and Secondary IH.
A short overview-
(IH) is the general term for the neurological disorders in which cerebrospinal fluid (CSF) pressure within the skull is too high. (Old names for IH include Benign Intracranial Hypertension and Pseudotumor Cerebri).- exert taken from The IH Foundation.org
Very little is known about this disease and thousands of people are going without proper care. Many Doctors don’t know enough, add on the fact that there is no cure and things begin to go from bad to worse.
What is IH?
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